Health groups call for school students to be taught about endometriosis – ABC News

Original article published here

A coalition of women’s health groups want all teenagers to be taught about menstrual health in schools to raise awareness about the potentially debilitating condition endometriosis.

Key points:

  • Health groups call for menstrual education in schools
  • Endometriosis patients say they are being misdiagnosed
  • Students missing school because of period pain

As many as one in 10 Australian women have endometriosis, where tissue similar to the lining of the uterus occurs in the pelvis and other parts of the body.

It can cause severe, debilitating pain and symptoms including fatigue, abnormal periods, infertility and nausea.

Steph Tsimbourlas, 25, endured years of pain before even hearing about endometriosis.

“I was experiencing symptoms that were specific to endo. Pain, painful periods, pain when having sex and feeling tired,” she said.

Despite her symptoms, she was misdiagnosed by doctors for five years, until a laparoscopic surgery diagnosed her endometriosis in 2015.

“I was experiencing all the symptoms, yet according to my doctors, there were a million other things that it could have been before it was endo. ‘You have scar tissue, you have cysts, do this ultrasound, do that’.”

‘Education is the way forward’

Along with other classmates, Steph said she missed lots of school because of period pain.

But she said she was never taught about endometriosis at school.

“In Year 12 PDHPE [health and physical education], we learned about periods but mainly regarding bloating and PMS,” she said.

“I never ever heard about it then. I would have mentioned it [my symptoms] earlier.

“I wish I’d been told in high school that painful periods aren’t normal.”

About 20 per cent of teenage girls in Australia miss school because of period pain, according to Dr Susan Evans from the Pelvic Pain Foundation.

“Education is the way forward to avoid future generations of girls and women suffering as their mothers have,” Dr Evans said.

The coalition is made up of patient groups such as EndoActive, the Pelvic Pain Foundation, as well as medical research groups such as the Hudson Institute of Medical Research and the Universities of Adelaide, Melbourne and NSW.

The health groups want endometriosis to be designated as a national health priority area.

They also want a public awareness campaign, school education and new clinical pathways for doctors to better diagnose and treat the condition.

Pilot program to teach menstrual health in schools

The Pelvic Pain Foundation is one of a number of health groups which form the Australian Coalition for Endometriosis.

Endometriosis symptoms:

  • Unusually intense period pain
  • Pain on or around ovulation
  • Bowel or bladder problems
  • Heavy or irregular bleeding
  • Fatigue

Source: Endometriosis Australia

In August 2017, it piloted a menstrual education program in 10 South Australian schools.

It was based on menstrual health and endometriosis education provided in New Zealand secondary schools since 1995.

The pilot program’s evaluation will be published early next year, Dr Evans said.

The Australian Coalition for Endometriosis will meet Health Minister Greg Hunt to discuss endometriosis education to outline their priorities.

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